Baiba Ziemele

Baiba Ziemele is a passionate patient advocate from Latvia. Living with inherited bleeding disorder, von Willebrand disease, she has been heavily involved in patient advocacy, becoming president of Latvia Hemophilia Society in 2009, representing European community with bleeding disorders as ePAG in EuroBloodNet, European Reference Network for rare hematological diseases, engaging in various committees at European Haemophilia Consortium and World Federation of Hemophilia. She has helped shaping rare disease policy nationally and internationally. Since 2018, Baiba has also been building the Latvian Network of Patient Organizations to bring united patient voice and represent patient interests at various tables. In 2022, Baiba received a Human Development award for outstanding contribution to health from the Civic Alliance Latvia and US Embassy in Latvia and was awarded Person of the Year 2023 in Medicine by Latvian Medical Association. The magazine 'Pastaiga' announced her one of most influential women in Latvia in 2024.